Hello all....so sorry for the delay. . . we have been very busy to say the least.
Well we arrived back in Pittsburgh on November 27th. Caleb did have his palate repaired and the recovery was difficult. While he was recovering from that surgery the poor guy tore his Nissan wrap (the tightening of the tummy to help with his reflux). So needless to say we had to have the wrap redone. Then we finally went home after New Years-thanks to all who send cookies, presents, etc. to us while we were in the hospital for the holidays, once again you all are awesome.
We were home for about two days, 40 hours, and Caleb got really sick and was life-flighted to Children's he was hypoglycemic (low sugar), hypovolemic (low fluid volume), and septic (had an infection. He was fluid resuscitated twice and almost went into cardiac arrest he spent two weeks in the PICU and step down ICU. He fought back and recovered well and was able to come back home. He is now back on TPN (IV nutrition) and low volume feeds (just enough to keep his gut active). I have learned how to take care of the IV line-very nervewracking. We have visited the ER three times since we have been home in the last week and a half. Brian and I woke up this morning and we think he now has a UTI so I just put a urine specimen bag on him and we will send that to the hospital to see what that shows--poor guy.
So needless to say I am sure you can see why I haven't updated in awhile. I miss you all so much and cannot thank you enough for all the prayers.
Now that I hope we are somewhat settled (knock on wood) I will try to update more regularly.
God Bless you all!!
God Bless Caleb!!
7 comments:
I am glad to hear an update and I hope things slow down soon for you all and you can have some more time at home and less time in the hospital. You have been in my thoughts for the last month. Thanks to your friend I was able to hear an update since I have so many Eva fans reading Caleb's site and asking for updates.
Hugs and prayers,
Crystal and Eva
God Bless you all. So grateful you got an opportunity to sit down long enough to get on the computer. We love you all so much and we are praying for you!! We miss you all!! God Bless and lots and lots of love and hugs from afar!!!
Love-
Jen, Andy and Haleigh Rose
So good to "hear your voice" Sarah!! I can't imagine how good it must feel for the 3 of you to be home together. Challenging too, I know. Give Caleb and Brian and kiss from me and have Brian give you one from me too!!
Much love-
Chris XOXO
I'm so excited to hear that you, Caleb and Brian are home and all back together!! You've made it so far and been through so much, you deserve a lifetime of happiness and good health together. Give that adorable baby hugs and kisses from me and God Bless all three of you!
Prayers and Love,
-Niki
Sarah, please say you have some nursing help at home. You are going to need some long term support, trust me. You can't keep going at this pace or you will completely burn out.
Thinking of you and sending love to our fellow Wheeling family from out here in WA...
Amy and Mighty Max
Thank you for the update. We will be praying for you guys. Sorry to hear you have been having such a rough time.
So good to hear what's been going on with Caleb. So sorry it's been so rough. People say this all the time about many of our kids but Caleb is the epitomy of a fighter!! What a strong little guy!
We are putting off Tate's palate repair because the recovery scares us so much. He's not eating orally so he can wait.
I'm praying that he didn't have a UTI and things are calm with you guys. You are awesome!!
Thanks for updating us.
God Bless,
Corrie
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