Caleb Paul Hlebiczki: October 2007

Thursday, October 18, 2007

Sorry for the Delay

Hi all, Sorry for the delay in updates. Our computer broke so it is hard to get to the Ronald McDonald Room to use the computer.

Caleb is playing tons. We have a couple issues. His LFTs, liver function tests, are up so they are doing some tests to see what is causing it. Hopefully, if anything it is his TPN. We are working on his feeds to hopefully get him up to a high level. Slowly but surely we are working towards it. His biopsy on his Thymus can't even happen until EARLIEST November 12th. So hopefully we continue to keep Caleb healthy. As soon as we get our computer back I will post some pics.

I will update more soon.

God Bless everyone.

God Bless Caleb!!

Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.