Caleb Paul Hlebiczki: July 2012

Monday, July 09, 2012

Where has the Time Gone

I can't believe in just a few days my little boy will be six years old. He is such an amazing little boy. As most of you know, I have recently gone back to work and i think I may take Thursday off to spend with my little man. He deserves it! We also went to the beach recently. Caleb did great! I will be posting pics soon!

God Bless you all!!

God Bless Caleb and Camryn!!

Caleb had several anomalies to deal with from birth due to his two rare syndromes. Some have been repaired through many surgeries, others will be managed via different methods throughout his life. Some of these anomalies are: hydrocephalis (water on the brain), agenesus of the corpus callosum (missing the major bridgeway between the left and right side of his brain), kiari malformation (small and low set cerebellum), abnormal folds on his brain, deafness (deaf in the left ear and moderate/severely deaf in the right ear), cleft lip and palate, two holes in the heart, an extra atrium (chamber of the heart), hypoparathyroid, severe GERD (reflux), double hip dysplasia, no immune system, severe delays and aversions, hernias (umbilical, inguinal, hiatal), history of pancreatitis (due to being on IV nutrition for an extended amount of time). The list is extensive but this is a general introduction of what Caleb has dealt with.