Endocrinology

The Endocrinology appointment is over. Caleb has been diagnosed with Thyroid disease, Hoshimoto's Thyroiditis. He has been put on a pill to supplement hormones for this. They will also be doing more bloodwork and an X-ray today to see if the CHARGE syndrome has effected his growth. If it has, he would have to get daily injections. We are now waiting for his heart Echo.

God Bless you all!!

God Bless Caleb and Camryn!!

Steak Fry

The steak fry went so well Friday. It was a huge success. Thank you so much Keith for your hard work and making this such a huge success. Thank you to all the people who donated for the various prizes and to all of our family and friends that were there to show support. We cannot thank you enough.
Tomorrow Caleb has more clinic appointments. He will see Endocrine, cardiology, nephrology, and ophthalmology. Cardiology will be looking at one issue that was noted regarding his heart during his last admission. Hopefully, it's nothing. Please pray these are uneventful visits.

God Bless you all!!

God Bless Caleb and Camryn!!

One Week From Today

In one week from today, the steak fry our neighbors are throwing Caleb will occur.  I cannot thank Keith and Jess for throwing countless others for their hard work and contributions.  I have always said we have been blessed by our friends the past 6 years.  We cannot thank you all enough.  Have a safe and fun weeekend.  Go Mountaineers!

God Bless you all!!

God Bless Caleb and Camryn!!

Happy 5 Year Thymus Transplant Anniversary Caleb!!

I can't believe it has been five years.  Here is my post from five years ago. 

Caleb Paul Hlebiczki: Surgery is Started: Well, Caleb went into surgery earlier than planned. The first case cancelled so Caleb went in at 8:45 and they are planning on a two hour s...


Happy Transplant Anniversary Caleb!!  Keep fighting lil' man.  You are doing awesome.

God Bless you all!!

God Bless Caleb and Camryn!!

Labs

Well the labs from clinic yesterday are already coming back. Good news, no allergies. Not so good new, Caleb's thyroid is really acting up. His thyroid levels are so high his immunology doctor at Children's called me tonight and told me she called Endocrine to tell then he needs to be seen ASAP So we are waiting for Endocrine to call and we will go from there. She said he definitely has Hoshimotos and needs medicine before he starts getting side effects from it.
We are still waiting for his immune bloodwork to come back. I will update when I know more.

God Bless you all!!

God Bless Caleb and Camryn!!

Clinic update 2

Caleb, due to his immune suppression, was not able to have an allergic response to things in his environment. However, we have wondered if he has sinus/allergy and asthma issues due to some things we have noticed. He may have some allergy testing done today. Waiting to c doc.
No scratch test will be done. They will be doing bloodwork to check for allergies.
God Bless you all!!

God Bless Caleb and Camryn!!

Clinic update 1

Update: kinda bummed the hearing specialist was not notified we wanted to talk about the BAHA implant. So, we have to now schedule another appt on top of the day of clinic appointments two weeks from today. Already coordinating docs for his next surgery. So far these docs include dentist for teeth cleaning, cavities (from reflux), caps ( due to him grinding his teeth down), ENT (for tubes), possible brain stem hearing test, and MRI. We will see if any more docs from today or in two weeks will be added on to the surgery. More updates to come. On a lunch break now.

God Bless you all!!

God Bless Caleb and Camryn!!

Clinic Day

Long clinic day tomorrow at Children's hospital for Caleb. One of the appointments, we will see if Caleb could be a candidate for a BAHA implant to help him with his hearing. He has already been denied for cochlear implants. Very hard to be a candidate for these hearing devices, a lot of guidelines. More updates when I can.
God Bless you all!!

God Bless Caleb and Camryn!!

Seeing Some Progress

Hi all, just a quick little update.  In the past few weeks since Caleb has started school we have really seen some progress, which is very exciting as Caleb used to hold back in the school setting.  However, he seems to have really taken to his new teacher and per the school work they are sending home, he is doing some work on his own and is even become a pro at writing his own name.   Wow, my little boy can write his name..

I think I will leave it at that :)

Have a great day everyone!

God Bless you all!!

God Bless Caleb and Camryn!!

Where has the Time Gone

I can't believe in just a few days my little boy will be six years old.  He is such an amazing little boy.  As most of you know, I have recently gone back to work and i think I may take Thursday off to spend with my little man.  He deserves it!  We also went to the beach recently.  Caleb did great!  I will be posting pics soon!

God Bless you all!!

God Bless Caleb and Camryn!!