Hi everyone! Caleb seems to be doing better! That first night after surgery was definitely rough. Poor guy! We have found out that sometimes if you have two types of anesthesia, like he did, it can make you sick. He definitely had a hard time recovering.
His g-tube site is still trying to heal. I wish that hole would close on it's own. The last thing all of us wants is ANOTHER surgery. So please keep praying that it heals on its own.
Great news, Caleb has started to hold his sippy cup and take drinks! We have been working on this for awhile now and two nights ago he decided to do it! So proud of him. He has also been trying to take more steps on his own. Praying this is a sign that we may have a walker soon! He also has been trying to mimic Bri and I now when we say not only words but FULL SENTENCES. He is growing up! So proud of my baby! Caleb and I also went to the grocery store on our own the other day. We are really trying to carefully ease up on the isolation restrictions. The past times we have gone grocery shopping with Bri, but Caleb and I did it on our own! Who knew grocery shopping would be so much fun!
Thanks for checking in! Please pray that g-tube hole closes on its own.
God Bless you all!!
God Bless Caleb!!
Wednesday, April 14, 2010
Thursday, April 08, 2010
Surgery Update
Well Caleb had his surgery yesterday. We got up at 5 and were out of the house at 6. We arrived at Children's Hospital right at 7:30. A couple minutes before we reached Children's Caleb was asking for milk. This is the first time we have had to deal with a child that drinks and eats pre-op. So it was very difficult for him to understand why he couldn't have any milk. But we and he dealt with it well. Once we got back in the pre-op area, poor Caleb knew all too well where we were. He got very upset. My heart broke, as I realize that now that he is older he knows what is to come. We got him calmed down in the pre-op area and watched some cartoons while we waited. I am not sure if the wait wasn't long or if my nerves were so bad that I didn't notice how fast time was passing. But soon they were ready to take him to the OR. I had such a hard time also in the pre-op area. I know some would think that the amount of surgeries Caleb has had up to this point, which would be probably in the 30's, that one would get 'more used' to the routine. But it is quite the opposite. They do give you the option of going into the OR with your child as they put them under the General Anesthesia, but I did that two times before and it is very hard to see. So I carried Caleb the whole way from the pre-op room, down the hall, until the docs said that was as far as we could go with him. As I went to put Caleb back in the crib, it broke my heart as he cried and said 'nana' and reached out for me and Brian. That is the first time he also 'verbalized' how upset he was. It doesn't get easier. His surgery was finally done and soon we were able to see him. We went back and he was curled up in a ball in his crib. The nurse asked Bri and I if he was a cuddler and we said yes, and she said she could tell by how he was sleeping in the ball in the side of the crib. I immediately picked my lil man up. Once again, trying to figure out where all the tubes and wires were to make sure I didn't pull anything. I can't believe he had tubes and wires on him constantly and how moving him around with all these things attached to him at one time for so long was second nature. Nevertheless, I scooped up my lil man and held him. Then, I handed him off to Bri so he could hold him also. Once he began to wake up he was very groggy. It took him about an hour and a half to come out of the anesthesia and drink enough to come home. On the ride home, he didn't seem as 'unaffected' by the surgery as he has with some of his previous surgeries. Once we got him home, he curled right up on the couch and passed out. He slept for about 2 hours and then woke up and was very cranky and obviously in some pain. We gave him some pain meds and he then passed back out. We also realized this was about the time that the epidural they gave him for pain was probably wearing off. He then slept for about two more hours, waking up in between crying. At about 8 o'clock he tried drinking some watered down milk and it went well, but an hour later he started gagging like he was going to be sick. This is also a new thing for us and him as he always had the g-tube and if he was sick we just vented that to prevent the vomiting. So he cuddled with his daddy while he was sick to his tummy and the nausea seemed to subside (as he can't actually tell us, but we could tell from his demeanor) as he started to move around a little more. After sharing some jello with his dad we got Caleb into bed. He slept through the night and seem to be doing better this morning.
I cannot thank everyone enough for all the messages on facebook and texts regarding Caleb and all the prayers for him and our family. You all have been so supportive to all of us throughout this and we cannot thank you enough. You all are amazing people and friends. Thank you for being such a wonderful support system for our family!
God Bless you all!!
God Bless Caleb!!
I cannot thank everyone enough for all the messages on facebook and texts regarding Caleb and all the prayers for him and our family. You all have been so supportive to all of us throughout this and we cannot thank you enough. You all are amazing people and friends. Thank you for being such a wonderful support system for our family!
God Bless you all!!
God Bless Caleb!!
Saturday, April 03, 2010
Therapy Evaluations and G-tube update
So we got to take Caleb to two out of three of his therapy evaluations at the new clinic the other day. It was nice that Brian was off and was able to go with us. We were so very impressed with the facility and the therapists, they were amazing. Brian and I felt so good after we left there. It would have been nice if we could have done it sooner, but Caleb's immune system at that time wouldn't have allowed it! WE are so excited! They have amazing equipment that I hope and pray will help Caleb with his delays.
One of the biggest goals is to get Caleb walking. Some other goals: communication (i.e. letting us know what he would like to eat, letting us know if he doesn't feels well by signing or saying something like 'my tummy hurts', letting us know what he would like to do, etc) brushing his teeth and spitting it out when he's done, dressing himself, going up and down stairs, these are just a few but some of the bigger goals. He can do it!
Also, his g-tube site, continues to leak. We are changing the dressing constantly along with outfits. It has been nice that the weather has been so warm because due to all the leaking, I let him go around the house in his diaper and sometimes a shirt. He loves it, he hates wearing clothes. I have called the docs again regarding trying to get it surgically closed next week when they fix his hernia and unfortunately they put me through to a nurse who has no idea of how many surgeries Caleb has been through already and how if we could group these too surgeries together it would be better for him. So frustrating! But I am praying that it will close on its own before then and he won't need it to be surgically closed.
Well that is all the updates for now. Gonna color some eggs today. Still trying to figure out how to approach the Easter egg hunt with Caleb as I am not sure he will understand. We will see!
Happy Easter Everyone!
God Bless you all!!
God Bless Caleb!!
One of the biggest goals is to get Caleb walking. Some other goals: communication (i.e. letting us know what he would like to eat, letting us know if he doesn't feels well by signing or saying something like 'my tummy hurts', letting us know what he would like to do, etc) brushing his teeth and spitting it out when he's done, dressing himself, going up and down stairs, these are just a few but some of the bigger goals. He can do it!
Also, his g-tube site, continues to leak. We are changing the dressing constantly along with outfits. It has been nice that the weather has been so warm because due to all the leaking, I let him go around the house in his diaper and sometimes a shirt. He loves it, he hates wearing clothes. I have called the docs again regarding trying to get it surgically closed next week when they fix his hernia and unfortunately they put me through to a nurse who has no idea of how many surgeries Caleb has been through already and how if we could group these too surgeries together it would be better for him. So frustrating! But I am praying that it will close on its own before then and he won't need it to be surgically closed.
Well that is all the updates for now. Gonna color some eggs today. Still trying to figure out how to approach the Easter egg hunt with Caleb as I am not sure he will understand. We will see!
Happy Easter Everyone!
God Bless you all!!
God Bless Caleb!!
Wednesday, March 31, 2010
Big Boy Room and More Changes
So Caleb finally got all his big boy furniture in his room! I couldn't believe when I walked in how grown up his room looked, no evidence of a baby anymore :( But it is good that he is growing and is in a big boy room
First night sleeping in his big boy bed.
He loves waking up in the morning and seeing himself in this mirror from his bed.
One fixture that we are so glad that is not in the room anymore is his IV pole. I can't believe at one time we had three pumps (two for his IV and one for his feeding tube) on the IV all the time and that he was at one time constantly hooked up to those pumps! So his newest accomplishment is that he has been drinking and eating enough by mouth that he is sustaining his weight so he doesn't need supplemented by the feeding tube at night anymore.
In relation to the feeding tube, he has also been taking his meds by mouth. He still resists when he sees me coming with the syringes at med time, but he is doing well. So since Caleb is taking his meds and eating and drinking well we decided to...
now ya see it
now ya don't
After we got done taking the g-tube out and putting the bandaid on Caleb seemed happy...
Sometimes, these holes, left by the g-tube will heal on their own, within a couple hours, other times, they don't. It has been a day now since we took it out and Caleb's is still leaking a lot, requiring many dressing and shirt changes. With how long Caleb has had his, and with how the stomach lining started to come out of the hole (sorry too much info) we are worried it may not heal on its own. If not, it will require to be stitched in surgery. Please pray this heals on its own and that he doesn't need surgery to close it up! Way to go Caleb on another HUGE hurdle!
Also, Caleb's hernia surgery is schedule for April 7th. The craniofacial team does not want to group the nose repair with this surgery as they feel it would be too much at once. So, as long as the surgery goes well and he extabates okay it should be a same-day surgery. We did ask if they would just go ahead and close the hole left from the g-tube while they are in there, and they said they would rather wait a couple weeks. I am a little upset with their response as if he is in there, why not do it while he is under rather than doing another surgery and exposing him to more General anesthesia. We are also planning a little vacation in a couple weeks, and it would be really nice if that g-tube site was closed up. So please pray for a smooth surgery and that the g-tube site heals quickly and on its own!
Also, we are meeting with new therapists tomorrow for Caleb's evaluation. This is the therapy I talked about a couple posts back that will be an out-patient clinic therapy that he will have to go to the site and do his therapy. They have tons of equipment that we hope will help Caleb with his delays!
Way to go Caleb for all your continued achievements!
Thanks all for checking in!
God Bless you all!!
God Bless Caleb!!
Wednesday, March 10, 2010
Clinic Appointments
So as promised I am updating regarding Caleb's clinic appointments last week. Very busy week to say the least.
So on Monday we saw the whole craniofacial team, our family. This was the first group of docs that we met at Children's so we feel very close to all of them. They always watched over us and Caleb when Caleb was in the hospital. We hold them all very close to our hearts. With that being said, a couple things resulted from Caleb's clinic appointment with them. First, he needs to have his teeth cleaned, and thankfully he will not have to be put under General Anesthesia to have his teeth cleaned. I will be able to hold him when his teeth are cleaned. So thankfully that is one less exposure to GA. Also, Dr. Losee, Caleb's craniofacial surgeon, did suggest Caleb have his nose repaired one more time since Caleb didn't have the optimal molding circumstances prior to surgery due to how sick he was. So he said he would like this to be done before Caleb starts school. We also talked about tacking Caleb's right ear back at that same time. His right ear was folded over in utero therefore it grew bent over. The tacking of the ear will help his hearing aid stay on better also. Since this is the better of the two ears, hearing wise, and this is the only ear that can wear an aid, we want it to be the best fit for wearing the aid too. We also saw a speech therapist, who based of what sounds and words we told her he says (as he still doesn't talk in public yet as he if VERY shy when he gets out as being in public is very very new to him) they think his palate repair is working well in regards to his speech. We were then off to see ENT and audiology. They did another hearing test and it seems like the results are the same as in the past, severe deafness in the left ear and moderate to severe hearing loss in the right ear. These results are still surprising to all of us that interact with Caleb as it seems he hears so much and some things that are so low-toned and quiet. Also the ENT said that now they suggest a Catscan to see if there is anything anatomically that is causing the hearing loss or if there is anything that they could do to help his hearing. After that test, Caleb will then be seen in the Hearing Center to review the results. I did again ask if Caleb was a candidate for cochlear implants and they said that since he has a little bit of hearing in the one ear they do not want to do cochlear implants at this time, unless his hearing gets worse. Cochlear implants destroy all natural hearing and the hearing is replaced with an electronic style of hearing so he is not a candidate at this time as they do not want to destroy what hearing he has.
On Thursday, Caleb had an appointment with General Surgery to have a post opp appointment regarding his circumcision and to see what they think about the spot that I thought was an inguinal hernia. Well, first the doc said he healed well from the circumcision and I was right it is an inguinal hernia, which needs repaired ASAP. Ugh poor guy, I was really hoping, which I new wasn't realistic, that they would say let's see if it heals on it's own. But in the back of my mind, I knew that wouldn't be the case.
After that appointment I then walked over to craniofacial and told them what we found out about the hernia and that Caleb would need surgery and asked them if they would want to do the nose and ear repair at the same time, for one less GA exposure for Caleb. We have done this in the past, group surgeries together (logically though-not doing too much) to limit the amount of times Caleb is exposed to general anesthesia. But again, this depends on what is being done, who is doing it, the amount of pain that could be involved, etc. So there are plenty of factors. We are still waiting to hear back from Craniofacial as to whether they want to do these surgeries together. I doubt that they would feel comfortable doing a hernia with a nose repair, based on the locations of the surgeries. We will see. I will update when I hear. He also has an appointment with the Children's Immunologist on Friday and I will update on that too. Sorry this update took so long, but I was very tired after all the appointments last week.
So I wanted to include some pictures this post too! I included some of Caleb out in the snow for the first time, so cute.
Caleb peeking next to our awesome dog, Saba. 
Caleb also just got new big boy furniture for his bedroom. I can't believe how grown up his room looks. I will post those pics soon. You won't believe it!
Thanks for checking in!
God Bless you all!!
God Bless Caleb!!
So on Monday we saw the whole craniofacial team, our family. This was the first group of docs that we met at Children's so we feel very close to all of them. They always watched over us and Caleb when Caleb was in the hospital. We hold them all very close to our hearts. With that being said, a couple things resulted from Caleb's clinic appointment with them. First, he needs to have his teeth cleaned, and thankfully he will not have to be put under General Anesthesia to have his teeth cleaned. I will be able to hold him when his teeth are cleaned. So thankfully that is one less exposure to GA. Also, Dr. Losee, Caleb's craniofacial surgeon, did suggest Caleb have his nose repaired one more time since Caleb didn't have the optimal molding circumstances prior to surgery due to how sick he was. So he said he would like this to be done before Caleb starts school. We also talked about tacking Caleb's right ear back at that same time. His right ear was folded over in utero therefore it grew bent over. The tacking of the ear will help his hearing aid stay on better also. Since this is the better of the two ears, hearing wise, and this is the only ear that can wear an aid, we want it to be the best fit for wearing the aid too. We also saw a speech therapist, who based of what sounds and words we told her he says (as he still doesn't talk in public yet as he if VERY shy when he gets out as being in public is very very new to him) they think his palate repair is working well in regards to his speech. We were then off to see ENT and audiology. They did another hearing test and it seems like the results are the same as in the past, severe deafness in the left ear and moderate to severe hearing loss in the right ear. These results are still surprising to all of us that interact with Caleb as it seems he hears so much and some things that are so low-toned and quiet. Also the ENT said that now they suggest a Catscan to see if there is anything anatomically that is causing the hearing loss or if there is anything that they could do to help his hearing. After that test, Caleb will then be seen in the Hearing Center to review the results. I did again ask if Caleb was a candidate for cochlear implants and they said that since he has a little bit of hearing in the one ear they do not want to do cochlear implants at this time, unless his hearing gets worse. Cochlear implants destroy all natural hearing and the hearing is replaced with an electronic style of hearing so he is not a candidate at this time as they do not want to destroy what hearing he has.
On Thursday, Caleb had an appointment with General Surgery to have a post opp appointment regarding his circumcision and to see what they think about the spot that I thought was an inguinal hernia. Well, first the doc said he healed well from the circumcision and I was right it is an inguinal hernia, which needs repaired ASAP. Ugh poor guy, I was really hoping, which I new wasn't realistic, that they would say let's see if it heals on it's own. But in the back of my mind, I knew that wouldn't be the case.
After that appointment I then walked over to craniofacial and told them what we found out about the hernia and that Caleb would need surgery and asked them if they would want to do the nose and ear repair at the same time, for one less GA exposure for Caleb. We have done this in the past, group surgeries together (logically though-not doing too much) to limit the amount of times Caleb is exposed to general anesthesia. But again, this depends on what is being done, who is doing it, the amount of pain that could be involved, etc. So there are plenty of factors. We are still waiting to hear back from Craniofacial as to whether they want to do these surgeries together. I doubt that they would feel comfortable doing a hernia with a nose repair, based on the locations of the surgeries. We will see. I will update when I hear. He also has an appointment with the Children's Immunologist on Friday and I will update on that too. Sorry this update took so long, but I was very tired after all the appointments last week.
So I wanted to include some pictures this post too! I included some of Caleb out in the snow for the first time, so cute.
Bundled up to go out. HA HA too cute right?!?!
Caleb peeking next to our awesome dog, Saba. Caleb also just got new big boy furniture for his bedroom. I can't believe how grown up his room looks. I will post those pics soon. You won't believe it!
Thanks for checking in!
God Bless you all!!
God Bless Caleb!!
Friday, February 26, 2010
Bump in the Road
Hello all...I hope everyone is staying warm and being safe in all the snow.
Well, we have hit a little bump in the road. The other day when I was getting Caleb out of the tub I noticed a bump that looked like an inguinal hernia to me. I called the doctor and they scheduled an ultrasound. Well, the ultrasound was this morning and the tech that did the ultrasound was puzzled as the bowel didn't seem to be entering the area where the fluid sac was and wasn't 'acting' like a hernia. She then asked if Caleb had any bowel issues at birth and I immediately said 'no'. I called his pediatrician and told her about the ultrasound and I am waiting to hear back from her. I am really hoping I hear something today as the hernia (that is what I will call it for now) has been more noticeable every day. Please pray that it is nothing serious and it is something that can heal on its own, the last thing Caleb needs is another surgery.
God Bless you all!!
God Bless Caleb!!
Well, we have hit a little bump in the road. The other day when I was getting Caleb out of the tub I noticed a bump that looked like an inguinal hernia to me. I called the doctor and they scheduled an ultrasound. Well, the ultrasound was this morning and the tech that did the ultrasound was puzzled as the bowel didn't seem to be entering the area where the fluid sac was and wasn't 'acting' like a hernia. She then asked if Caleb had any bowel issues at birth and I immediately said 'no'. I called his pediatrician and told her about the ultrasound and I am waiting to hear back from her. I am really hoping I hear something today as the hernia (that is what I will call it for now) has been more noticeable every day. Please pray that it is nothing serious and it is something that can heal on its own, the last thing Caleb needs is another surgery.
God Bless you all!!
God Bless Caleb!!
Saturday, February 20, 2010
Bottoms Up!
So Caleb has been doing great with drinking. He has been drinking around 30 oz of fluids a day! CRAZY huh?!? We are so excited! He is doing so well that we have stopped all feeds by his feeding tube at night. Our little boy is getting all his fluid intake right now by mouth! We are praying hard this continues! We would love to get his mic-key button out! The next step will be to figure out what to do with his meds as he still gets all of those via g-tube, and some are through the night too! So this will be tricky, but he can do it! We have faith!
Also another tidbit of great news...he is kicking that nasty cold on his own! Once again he did better with the cold than I did! He is closer to getting rid of it than I am and he required no medicines to help! WOOOOOHOOO Caleb! I am so proud of my lil' man! He is so awesome!
We have a busy month coming up of clinic appointments coming up so I will update everyone on the appointments as they happen.
We also may potentially be going to Duke in the middle of March. We were contacted by wonderful Dr. Markert (the amazing Dr. that did his Thymus Transplant for Caleb's immune system) and they have received grant money to do more research work in regards to the Thymus Transplant. This phase of research would be to see if and when the body stops making T-cells after Transplant. It is a non-evasive phase of research. It consists of a 24 hr admission at Duke where Caleb will drink certain amounts of 'heavy' water (certain water that bonds to t-cells) every couple of hours. Then he will get doses of this water twice a day at home for the next month or so. Then blood work will be performed and analyzed. When Dr. Markert called me to ask if we will be interested there was not hesitation in my response once I heard it was non-evasive. She is an amazing woman, who has saved numerous kids, and how can you say no to such a remarkable woman. We love you Dr. Markert. I will be going over the consent with Dr. Markerts wonderful head RN, Stephanie on Monday. So I will update on this too once we learn more!
Also, Bri and I went to the high risk doctor yesterday that we saw when we were pregnant with Caleb. Right away on ultrasound they noticed the smaller of the twins didn't make it. I wondered if it was going to make it as in previous ultrasounds it looks so tiny compared to the other. Dr. Thomas was great! He sat in the room with us and looked at everything on the other baby: the brain, heart, spine, face, fingers, arms, ears, eyes, nose, lips, etc. And so far everything looks great! They did ask us if we wanted to know the sex of the baby...We wanted to keep it a surprise when pregnant with Caleb, but with all the complications we found out Caleb was a boy. With this pregnancy, we felt like we have had enough 'surprises' in our life. We also were worried that if it was a girl and we didn't find out the sex we would be dressing her in a lot of boy clothes! So they were able to look at the sex plate and let us know that.......IT's A GIRL! Caleb is going to have a little sister. Personally, that is a great scenario as I had two older brothers looking over me when I grew up (and they still do!) and now Caleb can watch over his lil' sister!
God Bless you all!!
God Bless Caleb!!
Also another tidbit of great news...he is kicking that nasty cold on his own! Once again he did better with the cold than I did! He is closer to getting rid of it than I am and he required no medicines to help! WOOOOOHOOO Caleb! I am so proud of my lil' man! He is so awesome!
We have a busy month coming up of clinic appointments coming up so I will update everyone on the appointments as they happen.
We also may potentially be going to Duke in the middle of March. We were contacted by wonderful Dr. Markert (the amazing Dr. that did his Thymus Transplant for Caleb's immune system) and they have received grant money to do more research work in regards to the Thymus Transplant. This phase of research would be to see if and when the body stops making T-cells after Transplant. It is a non-evasive phase of research. It consists of a 24 hr admission at Duke where Caleb will drink certain amounts of 'heavy' water (certain water that bonds to t-cells) every couple of hours. Then he will get doses of this water twice a day at home for the next month or so. Then blood work will be performed and analyzed. When Dr. Markert called me to ask if we will be interested there was not hesitation in my response once I heard it was non-evasive. She is an amazing woman, who has saved numerous kids, and how can you say no to such a remarkable woman. We love you Dr. Markert. I will be going over the consent with Dr. Markerts wonderful head RN, Stephanie on Monday. So I will update on this too once we learn more!
Also, Bri and I went to the high risk doctor yesterday that we saw when we were pregnant with Caleb. Right away on ultrasound they noticed the smaller of the twins didn't make it. I wondered if it was going to make it as in previous ultrasounds it looks so tiny compared to the other. Dr. Thomas was great! He sat in the room with us and looked at everything on the other baby: the brain, heart, spine, face, fingers, arms, ears, eyes, nose, lips, etc. And so far everything looks great! They did ask us if we wanted to know the sex of the baby...We wanted to keep it a surprise when pregnant with Caleb, but with all the complications we found out Caleb was a boy. With this pregnancy, we felt like we have had enough 'surprises' in our life. We also were worried that if it was a girl and we didn't find out the sex we would be dressing her in a lot of boy clothes! So they were able to look at the sex plate and let us know that.......IT's A GIRL! Caleb is going to have a little sister. Personally, that is a great scenario as I had two older brothers looking over me when I grew up (and they still do!) and now Caleb can watch over his lil' sister!
God Bless you all!!
God Bless Caleb!!
Monday, February 08, 2010
Hello again...
So Caleb continues to have his on and off days with drinking. The on days are pretty good now, he will drink OUNCES of milk and yes I said OUNCES. It is amazing the day he started chugging Brian and I were shocked. Love seeing him drink. One step closer to getting that feeding tube out, but we have to get him to drink daily and maintain his weight.
We are still having difficulty trying to get Caleb to walk. Good news we found out about a place closer to home that does speech, physical, occupational therapy and other services. We are so excited taht something like this exists so close to home! Brian and I DEFINITELY want to do this for Caleb, but this therapy does require Caleb to go to the facility. Now, Brian and I will have decide if we should wait until spring to start this therapy due to it being flu season. We are going to talk about it and also get Caleb's doctors' opinions. I am so so so so excited about this opportunity for Caleb hopefully this will help him with his walking, verbalizations, sign language, etc. This will be so great for him!
Unfortunately, Caleb has ANOTHER cold. We are very puzzled as were he got this cold. The poor guy has a very runny nose, cough, and is sneezing like crazy. We are praying that with rest he will recover from this cold and will not need antibiotics! Come on immune system, show us you are working!
Also another new development for our family. We found out that Caleb is going to be a big brother! That's right I'm pregnant. The ultrasound shows twins! One of the twins is a lot smaller than the other. We were planning on seeing the high risk docs that we saw when we were pregnant with Caleb as we are considered 'high risk' and even more so now that there are twin and those of different sizes. So we will see them in a couple weeks.
So as you can see we have been busy!
I will update again soon!
God Bless you all!!
God Bless Caleb!!
We are still having difficulty trying to get Caleb to walk. Good news we found out about a place closer to home that does speech, physical, occupational therapy and other services. We are so excited taht something like this exists so close to home! Brian and I DEFINITELY want to do this for Caleb, but this therapy does require Caleb to go to the facility. Now, Brian and I will have decide if we should wait until spring to start this therapy due to it being flu season. We are going to talk about it and also get Caleb's doctors' opinions. I am so so so so excited about this opportunity for Caleb hopefully this will help him with his walking, verbalizations, sign language, etc. This will be so great for him!
Unfortunately, Caleb has ANOTHER cold. We are very puzzled as were he got this cold. The poor guy has a very runny nose, cough, and is sneezing like crazy. We are praying that with rest he will recover from this cold and will not need antibiotics! Come on immune system, show us you are working!
Also another new development for our family. We found out that Caleb is going to be a big brother! That's right I'm pregnant. The ultrasound shows twins! One of the twins is a lot smaller than the other. We were planning on seeing the high risk docs that we saw when we were pregnant with Caleb as we are considered 'high risk' and even more so now that there are twin and those of different sizes. So we will see them in a couple weeks.
So as you can see we have been busy!
I will update again soon!
God Bless you all!!
God Bless Caleb!!
Tuesday, January 26, 2010
Once again sorry for the delay in posts
Sorry for the delay in posts. Caleb and I finally got rid of the nasty cold we had. He seemed to do a lot better with it than I did. That is definitely an encouraging sign in regards to his immune system. Of course he did need help with antibiotics, but he fought of the cold. I am just praying we make it through the rest of this nasty flu seasons without anymore bugs.
A couple of updates:
Caleb had a couple days where out of nowhere he was drinking! One day he drank up to six ounces of milk! He never even drank when he was born so this was awesome to see. Unfortunately, the last two days he has had no interest in drinking so we are hoping he will get the urge to drink again today. I am going to work with him after writing this post, so we will see how it goes. Fingers crossed!
Brian and I took Caleb out with us about a week ago and had so much fun. We went to the store and then...wait for it....to Applebees. WOW, I can't even express how awesome it was to be out as a family at a restaurant. We wiped down the highchair and table and asked the hostess to seat us as far away from others as possible. It was so neat to do this. I think Bri and I smiled all the way through dinner. A cute little story while we were at Applebees: when we first sat down Caleb got a kid menu (which was neat as our kiddo could eat something off the menu) and he kept saying applesauce and signing it and we figured out he saw the apple on the kids menu. Cute right?!? He also met a friend, a lady, who he waved to and flirted with all dinner. Reminded me of when he used to flirt with all the nurses, his girlfriends, when he was in the hospital. We also go to see a a couple of friends while we were out. It was so nice seeing you all and thanks for understanding and not getting too close to Caleb! We love you guys!
Caleb has been mimicking Bri and I more, which is fun. We try to get him to say all sorts of things. Our favorite so far is 'butterfly' he sounds so darn cute when he says it! A lot of this mimicking is done without his hearing aid too so that is amazing in itself also. In regards to his hearing aid, we got it fixed about two weeks ago. We tried a local audiologist which we loved, Tri-state Audiology, and she was great! Caleb wore his hearing aid the first day after getting it repaired but now we are having a lot of issues with trying to get him to keep it in. He has never done this. Have any other parents with kiddos with aids dealt with this? If so, what happened? Any feedback would be appreciated!
Well that is a good amount of updates for now, there are many more. I will update again soon so please stop back soon! Thanks for stopping by!
God Bless you all!!
God Bless Caleb!!
A couple of updates:
Caleb had a couple days where out of nowhere he was drinking! One day he drank up to six ounces of milk! He never even drank when he was born so this was awesome to see. Unfortunately, the last two days he has had no interest in drinking so we are hoping he will get the urge to drink again today. I am going to work with him after writing this post, so we will see how it goes. Fingers crossed!
Brian and I took Caleb out with us about a week ago and had so much fun. We went to the store and then...wait for it....to Applebees. WOW, I can't even express how awesome it was to be out as a family at a restaurant. We wiped down the highchair and table and asked the hostess to seat us as far away from others as possible. It was so neat to do this. I think Bri and I smiled all the way through dinner. A cute little story while we were at Applebees: when we first sat down Caleb got a kid menu (which was neat as our kiddo could eat something off the menu) and he kept saying applesauce and signing it and we figured out he saw the apple on the kids menu. Cute right?!? He also met a friend, a lady, who he waved to and flirted with all dinner. Reminded me of when he used to flirt with all the nurses, his girlfriends, when he was in the hospital. We also go to see a a couple of friends while we were out. It was so nice seeing you all and thanks for understanding and not getting too close to Caleb! We love you guys!
Caleb has been mimicking Bri and I more, which is fun. We try to get him to say all sorts of things. Our favorite so far is 'butterfly' he sounds so darn cute when he says it! A lot of this mimicking is done without his hearing aid too so that is amazing in itself also. In regards to his hearing aid, we got it fixed about two weeks ago. We tried a local audiologist which we loved, Tri-state Audiology, and she was great! Caleb wore his hearing aid the first day after getting it repaired but now we are having a lot of issues with trying to get him to keep it in. He has never done this. Have any other parents with kiddos with aids dealt with this? If so, what happened? Any feedback would be appreciated!
Well that is a good amount of updates for now, there are many more. I will update again soon so please stop back soon! Thanks for stopping by!
God Bless you all!!
God Bless Caleb!!
Friday, January 01, 2010
We had a great Christmas and New Year
So what is the meaning of Christmas...not the amount of present under the tree and how much money you spent...it is that your family and loved ones are around you. We were blessed to spend our second year in row AT HOME as a family for Christmas and New Year's. What a great day. Caleb didn't open his gifts as he wasn't sure about it but he was very intent when I or Brian unwrapped his presents. Thank you to all the Santas that sent Caleb gifts too. You all are too too kind, thank you so much! I have included some pics of a snowstorm that came a couple days before Christmas, Caleb opening his gifts, and Caleb looking/playing with the Steeler tree we got from my parents.
Unfortunately, a couple days after Christmas Caleb got very congested and we were not concerned as long as it didn't seem to bother him or get any worse. I, about two days after Caleb started getting congested, ran a fever and got very congested also. Well, this morning he woke up coughing or should I say barking like a dog or a seal. I walked into his room and he was sitting up in bed crying and coughing and trying to catch his breathe. Brian and I noticed his congestion had started moving lastnight and we were worried that maybe his congestion had moved to his chest. Our pediatrician is out of the office for the holiday so we decided to take him to MedExpress as we love all the docs there. They were great. We were so excited when we walked in and saw Dr. Burkland! He is not only an awesome doctor but a family friend! He said that both Caleb's and my symptoms are due to a nasty bug circulating around that is very similar to the flu. He listened to Caleb's lungs and said they sounded clear! Thank goodness. So they gave his a strong steroid via his g-tube that will hopefully help him with his cough and will help him get rid of his cold. I will post soon with updates on his cold.
Also, on a side note, some anonymous person is leaving unwanted comments on this blog. I now will get notifications when someone leaves a comment then if it is not that person I will post. So please don't be alarmed if you don't see your comment right away and PLEASE continue to leave you comments.
Thanks for checking in!!
God Bless you all!!
God Bless Caleb!!
Unfortunately, a couple days after Christmas Caleb got very congested and we were not concerned as long as it didn't seem to bother him or get any worse. I, about two days after Caleb started getting congested, ran a fever and got very congested also. Well, this morning he woke up coughing or should I say barking like a dog or a seal. I walked into his room and he was sitting up in bed crying and coughing and trying to catch his breathe. Brian and I noticed his congestion had started moving lastnight and we were worried that maybe his congestion had moved to his chest. Our pediatrician is out of the office for the holiday so we decided to take him to MedExpress as we love all the docs there. They were great. We were so excited when we walked in and saw Dr. Burkland! He is not only an awesome doctor but a family friend! He said that both Caleb's and my symptoms are due to a nasty bug circulating around that is very similar to the flu. He listened to Caleb's lungs and said they sounded clear! Thank goodness. So they gave his a strong steroid via his g-tube that will hopefully help him with his cough and will help him get rid of his cold. I will post soon with updates on his cold.
Also, on a side note, some anonymous person is leaving unwanted comments on this blog. I now will get notifications when someone leaves a comment then if it is not that person I will post. So please don't be alarmed if you don't see your comment right away and PLEASE continue to leave you comments.
Thanks for checking in!!
God Bless you all!!
God Bless Caleb!!
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