Okay so it's time to brag! Brian, Caleb, and I were hanging out on Sunday and Brian and I were sitting there talking when we both noticed Caleb started to CRAWL!! We were in shock! We didn't yell while he was doing it, as one of his many sensory issues is an aversion to loud noises. So when he does something like that you have to be careful how you react - no loud applause or YAYS, but he knew it was something great because when he was done he sat up and gave Bri and I the biggest smile. It was awesome, we both got really emotional. We knew someday that he could possibly crawl, but didn't think he was going to do it this soon. He hasn't done it again since, but we now know he can do it!
Also, Caleb got his tetanus shot on Thursday. Poor nurse Angeline - sometimes I think it is harder on the nurse! He also had the last dose of his Immunosuppresion medicine, Cyclosporine, last Wednesday. Dr. Markert and I were emailing back and forth last week and she is wondering if the fact that he was still on the Cyclosporine when he got his last Tetanus shot may have not allowed his body to react well from the shot. She said that since he was still pretty much on the Cyclosporine for this shot too, she is not sure if his body will react from this Tetanus shot either. I guess we will find out in a month when I draw his blood. Remember, this is still a pretty new procedure, the transplant, so it is still a learning process for Dr. Markert too. She said that in the future, she will probably not give any kiddo the Tetanus unless they are off the Cyclosporine. She is amazing. She was also very excited about Caleb crawling.
Caleb continues to do well with his therapy sessions. We are trying to get him to take stuff by mouth. He surprised me yesterday. . . I always put food in front of him just in case he may want to try it. This is even a big step for him too as he used to not even tolerate a plate with a couple items of food in his 'area' due to his sensory issues. But yesterday he took a couple of those cereal puffs that disolve in his hands and placed them in his mouth. Again, I had to act like it wasn't a big deal but WOW. I immediately called Brian on his cell phone and told him. Once Caleb put the cereal in his mouth though, he didn't know what to do as this is the first time he has done this ever in his life. Who knows when he will do this again though, as we have been told repeatedly that kiddos like Caleb with severe sensory issues may have a day like that and then it may be AWHILE until they do it again. But I am so glad we had that day! I truly believe the more we can let him 'control' the feeding situation the better. I guess we will have to wait and see.
I am in the process of trying to get help in regards to Caleb's insurance coverage for nursing and for billing. We just found out we owe $500 more to Duke when they have already billed over 1 million . . .and that is Duke alone ....who knows how much Children's bills will amount to. But I have been in contact with Governor Manchin, Congressman Mollohan, and all the senators offices so hopefully they will help us with this as it is getting overwhelming.
Well I have to go give Caleb a feeding bolus. Have a great day and thanks for checking in on us.
God Bless you all!!
God Bless Caleb!!
Tuesday, September 30, 2008
Tuesday, September 23, 2008
TPN or No TPN?!?!
So far Caleb is still off his TPN (intravenous nutrition). His blood work since we took the TPN away for the most part looks good. His body is not maintaining his protein level so we will probably need to add a supplement to his diet until he can manage that better. I, for now, am only drawing his blood once a week, unless he is symptomatic then I will draw and check his levels. I still have to flush and change the cap on the IV three times a week but it is definitely better than accessing that thing daily and hooking stuff up to it daily. He still needs that central line for his IVIG (fake immune system) infusions, so we cannot get rid of the line yet.
I talked with Dr. Markert and asked her if Caleb still needs the monthly RSV (bad respiratory infection) shots this winter and she, Brian, and I all agree that he should get it this winter, due to the immunosuppression. He will also be getting his tetanus shot tomorrow. Let's hope he responds to this one better.
Caleb did great this week with his therapy sessions. He is so amazing. He has now figured out how to get up on both his knees and hands, now we are just praying he starts crawling soon! This is unfortunately another delay due to his LONG stay in the hospital but we are amazed by this tough guy daily. He is overweight so we have cut his caloric intake from his formula (as he is still getting all nutrition via his g-tube/feeding tube) until he gets more mobile. Hopefully, he gets more mobile soon, so he can start being more independent and so he can start to burn more calories. We all continue to learn more sign language so that will help with the communication process.
Here is the video I promised a couple posts ago sorry, with a couple newer pics attached. Enjoy! OH a clarification on the gowns, masks, etc.,as people ask why some people are wearing some things and some aren't. Everyone except Brian and I wears a mask. The doctors philosphy is whatever we have been exposed to Caleb has already been exposed to. However, if either of us come down with something new then we would stay somewhere else if really bad or mask if not as bad. All people visiting except for the great grandmas change into clean uncontaminated clothes once they get here so they don't need to gown. Just a clarification as I know it may be confusing when you see the slideshow. Again enjoy! Thanks for checking in on us!
God Bless Caleb!!
I talked with Dr. Markert and asked her if Caleb still needs the monthly RSV (bad respiratory infection) shots this winter and she, Brian, and I all agree that he should get it this winter, due to the immunosuppression. He will also be getting his tetanus shot tomorrow. Let's hope he responds to this one better.
Caleb did great this week with his therapy sessions. He is so amazing. He has now figured out how to get up on both his knees and hands, now we are just praying he starts crawling soon! This is unfortunately another delay due to his LONG stay in the hospital but we are amazed by this tough guy daily. He is overweight so we have cut his caloric intake from his formula (as he is still getting all nutrition via his g-tube/feeding tube) until he gets more mobile. Hopefully, he gets more mobile soon, so he can start being more independent and so he can start to burn more calories. We all continue to learn more sign language so that will help with the communication process.
Here is the video I promised a couple posts ago sorry, with a couple newer pics attached. Enjoy! OH a clarification on the gowns, masks, etc.,as people ask why some people are wearing some things and some aren't. Everyone except Brian and I wears a mask. The doctors philosphy is whatever we have been exposed to Caleb has already been exposed to. However, if either of us come down with something new then we would stay somewhere else if really bad or mask if not as bad. All people visiting except for the great grandmas change into clean uncontaminated clothes once they get here so they don't need to gown. Just a clarification as I know it may be confusing when you see the slideshow. Again enjoy! Thanks for checking in on us!
God Bless Caleb!!
Friday, September 12, 2008
Happy Anniversary Caleb!!
Happy Anniversary Caleb!! Today is Caleb's 1 year anniversary of his Thymus Transplant. We continue to pray that it starts to work and give Caleb an immune system. Keep up the good work Caleb!!
God Bless Caleb!!
God Bless Caleb!!
Monday, September 08, 2008
Two Big Updates
Well two big updates.
1. Tonight is Caleb's first night off TPN (IV nutrition) and he is on total gut feeds via his g-tube(feeding tube). We are praying that Caleb can tolerate this change and not run into any issues like when we tried to get him off TPN before. Nervewracking and exciting.
2. Tetanus response: Well it wasn't the results we were hoping for. Dr. Markert let us know today that Caleb had a small response to the tetanus and she suggested doing another shot(two months after origional was given-so around the 20th of this month) and then doing lab work a month after the second shot is given and see if there is a response. She said some of these kids may have to do up to four shots to get a response. So. . .I guess we will see what happens as far as a response to the next tetanus.
Thanks for checking in on us!
God Bless Caleb!!
1. Tonight is Caleb's first night off TPN (IV nutrition) and he is on total gut feeds via his g-tube(feeding tube). We are praying that Caleb can tolerate this change and not run into any issues like when we tried to get him off TPN before. Nervewracking and exciting.
2. Tetanus response: Well it wasn't the results we were hoping for. Dr. Markert let us know today that Caleb had a small response to the tetanus and she suggested doing another shot(two months after origional was given-so around the 20th of this month) and then doing lab work a month after the second shot is given and see if there is a response. She said some of these kids may have to do up to four shots to get a response. So. . .I guess we will see what happens as far as a response to the next tetanus.
Thanks for checking in on us!
God Bless Caleb!!
Thursday, September 04, 2008
New Link at Left
Just an FYI. I added a new link (at left) . It is a new article on Duke's website regarding Caleb's awesome Dr., Dr. Markert, and her work saving babies like Caleb.
The picture at right is a picture we were fortunate enough to get of Caleb with Dr. Markert while we were at Duke. God Bless you Dr. Markert and your amazing team! Keep up the good work!
God Bless Caleb!!
Tuesday, September 02, 2008
A Walk a Little Further from Home
Brian, Caleb, and I were suffering from extreme cabin fever...so we did it!! We left the house and went further than a block from our house.
We went to Oglebay for our nightly walk. We were all so excited on the ride up to the park.
Once we got there, we got out, straightened out his IV and feeding tube and we were on our way.I have to admit, I got choked up. So awesome to do something like that with Caleb. He go to see deer, huge trees, the big fountain they have in the lake. It was so nice to be in a different area.
There park was not crowded at all. There were only one or two other people on the path so we were able to pull the stroller over to the side and keep him at a safe distance from other people. We liked it so much we went back two days later. We had a ball.I hope you enjoy the pictures we took. I know a couple look a lot alike, but we were so excited we had to take pictures!!
A couple side notes:
- I drew bloodwork last Tuesday to see how Caleb reacted to his Tetanus shot. The results can't come back soon enough. It may be up to a month before we hear anything. So please pray hard that his immune system reacted well.
- Caleb is now up to (ARE YOU READY?!?!) 80 mls/hour continuously on his gut feeds that are being given through his g-tube (feeding tube). If all goes as planned (again please pray hard for this too) Caleb would have three more increases on his feeds (and 3 more weans on his TPN -IV nutrition respectively) and then we would try to see how he does without the IV nutrition. This 'big switch' could happen at the earliest on the 8th. So please pray hard that he gets there with no problems and that he tolerates it well as the last time we tried this Caleb was life-flighted back to Children's, went into cardiac arrest, and was in the PICU for awhile.
- The therapists, Developmental and Speech, came and did there initial evaluations. No surprise that Caleb has a huge sensory issue that will need a lot of therapy. The speech therapist told us to hold off on trying to feed him by mouth as she believes she has to deal with his sensory issues all over before even trying to put anything in his mouth as this is sensory related also. We are going to get a Physical Therapist and an Occupational Therapist to work with him also. As they can work with him also on his sensory issues as well as some of his delays that were caused by being in the hospital for a year and a half. They are great girls and we are really excited for Caleb at how this therapy could help him.
- As far as nursing and insurance - as many have been asking. The situation is NO better. I appreciate all the emails and calls and I am definitely heading everyone's advice. I just don't want this issues to overshadow Caleb's tough work lately and I want to keep this post a positive one.
I also have a video montage ready, but I had to show off the pics of Caleb at the park. What a great milestone for the little man.
God Bless you all!! Thank you for checking in on Caleb!!
God Bless Caleb!!
Wednesday, August 20, 2008
Are You Kidding Me
Okay so to continue on the nursing coverage issue:
The nursing company was starting to get their act together and had hired an RN. Totally different between an RN and LPN in home care as RNs are the only ones who are allowed to touch IVs. Due to the fact that we have never had an RN, as promised by the nursing company, I had to administer all of Caleb's IV therapies which is a daily task. He also requires different monthly infusions which require constant vitals and monitoring and once again no RN was ever provided for those. Nevertheless, it seemed like we were going to get some days of 16 hours of nursing coverage but not all just yet. It is a shame it took the nursing company 7 months to get at least a couple days of 16 hours of nursing care that he qualifies for. BUT, a big surprise happened two weeks ago. I got a letter in the mail indicating that the insurance company was going to pull Caleb's nursing care all together based upon their review of his nursing hours that were being provided and one doctor's comments who hasn't physically laid eyes on Caleb since he was about 4 months old and who knows nothing about him. Fortunately, Caleb's doctors in Pittsburgh received the same letter and called the insurance company and said they couldn't pull his nursing care because of his condition. After Caleb's docs submitted plenty of paperwork the insurance company did approve nursing care, BUT GET THIS, only for 8 hours 6 days a week. Caleb's doctors did try to get him the 16 hours that they believe he deserves but the wonderful insurance company believes that since we have been 'getting by' on the 8 hours that the nursing company has provided and because I can take care of the IV that Caleb only qualifies for 8 hours of nursing care 6 days a week. So I guess, first off who cares about that 7th day if I get sick the IV will take care of itself. Also, I am penalized for learning how to take care of Caleb's IV because the nursing company never staffed his case with an RN. Also, I guess they would rather me not go back to work, go broke, lose my house, and then when we have nothing MAYBE they will help. AMAZING!! ABSOLUTELY AMAZING!!
God Bless Caleb!!
The nursing company was starting to get their act together and had hired an RN. Totally different between an RN and LPN in home care as RNs are the only ones who are allowed to touch IVs. Due to the fact that we have never had an RN, as promised by the nursing company, I had to administer all of Caleb's IV therapies which is a daily task. He also requires different monthly infusions which require constant vitals and monitoring and once again no RN was ever provided for those. Nevertheless, it seemed like we were going to get some days of 16 hours of nursing coverage but not all just yet. It is a shame it took the nursing company 7 months to get at least a couple days of 16 hours of nursing care that he qualifies for. BUT, a big surprise happened two weeks ago. I got a letter in the mail indicating that the insurance company was going to pull Caleb's nursing care all together based upon their review of his nursing hours that were being provided and one doctor's comments who hasn't physically laid eyes on Caleb since he was about 4 months old and who knows nothing about him. Fortunately, Caleb's doctors in Pittsburgh received the same letter and called the insurance company and said they couldn't pull his nursing care because of his condition. After Caleb's docs submitted plenty of paperwork the insurance company did approve nursing care, BUT GET THIS, only for 8 hours 6 days a week. Caleb's doctors did try to get him the 16 hours that they believe he deserves but the wonderful insurance company believes that since we have been 'getting by' on the 8 hours that the nursing company has provided and because I can take care of the IV that Caleb only qualifies for 8 hours of nursing care 6 days a week. So I guess, first off who cares about that 7th day if I get sick the IV will take care of itself. Also, I am penalized for learning how to take care of Caleb's IV because the nursing company never staffed his case with an RN. Also, I guess they would rather me not go back to work, go broke, lose my house, and then when we have nothing MAYBE they will help. AMAZING!! ABSOLUTELY AMAZING!!
God Bless Caleb!!
Sunday, August 10, 2008
Labs
First, I want to thank everyone for the emails and comments regarding our nursing issues. The drama continues with that situation, how ridiculous.
Anyway, I couldn't post any sooner about the labs because SUPRISE been without a nurse since Monday. But the labs didn't look too bad on Thursday. So Caleb was scheduled for another increase in feeds and a decrease in his TPN on Saturday. We went ahead with that wean and stools so far don't look too bad (knock on wood). I am interested to see what his labs look like tomorrow. I should draw them around 11:00 and hopefully get some results tomorrow afternoon.
Speaking of tomorrow ...HAPPY BIRTHDAY BRIAN. We love you. Caleb and I are so blessed to have Brian in our lives. He is a wonderful father, husband, and friend.
I will try to post tomorrow about Caleb's labs but I am going to try to make Bri some dinner, and for those of you who know how well I cook . . .it may take a couple attempts. HAHA
Again, thank you all for checking in on us.
God Bless you all!!
God Bless Caleb!!
Anyway, I couldn't post any sooner about the labs because SUPRISE been without a nurse since Monday. But the labs didn't look too bad on Thursday. So Caleb was scheduled for another increase in feeds and a decrease in his TPN on Saturday. We went ahead with that wean and stools so far don't look too bad (knock on wood). I am interested to see what his labs look like tomorrow. I should draw them around 11:00 and hopefully get some results tomorrow afternoon.
Speaking of tomorrow ...HAPPY BIRTHDAY BRIAN. We love you. Caleb and I are so blessed to have Brian in our lives. He is a wonderful father, husband, and friend.
I will try to post tomorrow about Caleb's labs but I am going to try to make Bri some dinner, and for those of you who know how well I cook . . .it may take a couple attempts. HAHA
Again, thank you all for checking in on us.
God Bless you all!!
God Bless Caleb!!
Wednesday, August 06, 2008
More, More, More
Okay . . . so I posted the other day that Caleb was signing more. BUT he actually signed it yesterday, probably around six times in a row, and knew what it meant as we were playing with his shape sorting game and I would hand him the pieces. When he wanted to play again he signed more. So touching!
Also, today Caleb sat up on his own around seven times in a row! So amazing.
Who knows how soon again he will sign more or sit up, but, we know he can do it. We are so proud of him. What an inspiration!
Well we increased Caleb's feeds up to 45 mls/hour and we may have to hold at that rate for awhile. Today Brian and I noticed that his stools were getting watery again. So far they are not frequent (if they get too frequent he may get dehydrated and labs may go really abnormal), but we don't want it to get to that point. I will be drawing blood in the morning to check how his body is tolerating the change too. We may have to decrease his feeds a little and go back up on the TPN. Not sure yet.
Okay, I don't want to be a drag but I have to post about this because it is my way to vent. Honestly, if I wasn't trying to go back to work to pay bills, I would get rid of our nursing care. Our nursing company has probably hired about eleven nurses. Seven out of the eleven didn't show up for their first day, and this continues to happen. The company calls me the SAME DAY the nurse is to come to the house to let me know she is coming and guess what - now show. One of the girls that didn't show up for four days in a row the company didn't even know that when I called, YET they wanted to try to send her back to the house a couple months later. One nurse that came in lied about her prerequisites and didn't even know how to take care of his feeding tube (pretty basic task for a nurse). Another nurses almost double dosed Caleb on one of his medicines on her first day if I wouldn't have caught her. Another nurse didn't show up for her second day and they couldn't find her and then they said 'yeah she is a little different'. As I have stated before Caleb qualifies for 16 hours of nursing care a day. We have never seen that! NEVER! We get about 8 hours now for about 4 days a week. So it is REALLY stressing me out lately. I do feel a little run down and very stressed because of this. Went to the doctor today for a bad sinus/ear infection and SURPRISE I have high blood pressure. I was one that always had below normal blood pressure. What gives?!?! Again, I don't mean to be a downer, but it's hard and such a continual disappointment that a service that is supposed to be there for your child and your family is still not being provided 8 months later. They guaranteed me when they took the case they could staff it. They can't get nurses to show up and the ones that do....they can't take care of him like they promised the company. I wish they could just pay me for the service they are not and have not been providing. I don't understand why it is this hard to get nurses to show up for work?!?! Do other families deal with this? I really really hope other families don't have to deal with the problems we have dealt with in regards to nursing. It is not fair and very disheartening.
Okay sorry for my ranting, but I needed to vent. I have been pretty upset today as I had another issue with nursing. I'm sorry, I am usually upbeat, but so disappointed with the nursing company and who they send into our home.
Okay got that out of my system. I will let you all know how his blood work looks either tomorrow night or Friday morning. OH YEAH new pictures are coming!!
Again, thank you all for checking in on Caleb. You are a wonderful support system for our family. God Bless you all!!
God Bless Caleb!!
Also, today Caleb sat up on his own around seven times in a row! So amazing.
Who knows how soon again he will sign more or sit up, but, we know he can do it. We are so proud of him. What an inspiration!
Well we increased Caleb's feeds up to 45 mls/hour and we may have to hold at that rate for awhile. Today Brian and I noticed that his stools were getting watery again. So far they are not frequent (if they get too frequent he may get dehydrated and labs may go really abnormal), but we don't want it to get to that point. I will be drawing blood in the morning to check how his body is tolerating the change too. We may have to decrease his feeds a little and go back up on the TPN. Not sure yet.
Okay, I don't want to be a drag but I have to post about this because it is my way to vent. Honestly, if I wasn't trying to go back to work to pay bills, I would get rid of our nursing care. Our nursing company has probably hired about eleven nurses. Seven out of the eleven didn't show up for their first day, and this continues to happen. The company calls me the SAME DAY the nurse is to come to the house to let me know she is coming and guess what - now show. One of the girls that didn't show up for four days in a row the company didn't even know that when I called, YET they wanted to try to send her back to the house a couple months later. One nurse that came in lied about her prerequisites and didn't even know how to take care of his feeding tube (pretty basic task for a nurse). Another nurses almost double dosed Caleb on one of his medicines on her first day if I wouldn't have caught her. Another nurse didn't show up for her second day and they couldn't find her and then they said 'yeah she is a little different'. As I have stated before Caleb qualifies for 16 hours of nursing care a day. We have never seen that! NEVER! We get about 8 hours now for about 4 days a week. So it is REALLY stressing me out lately. I do feel a little run down and very stressed because of this. Went to the doctor today for a bad sinus/ear infection and SURPRISE I have high blood pressure. I was one that always had below normal blood pressure. What gives?!?! Again, I don't mean to be a downer, but it's hard and such a continual disappointment that a service that is supposed to be there for your child and your family is still not being provided 8 months later. They guaranteed me when they took the case they could staff it. They can't get nurses to show up and the ones that do....they can't take care of him like they promised the company. I wish they could just pay me for the service they are not and have not been providing. I don't understand why it is this hard to get nurses to show up for work?!?! Do other families deal with this? I really really hope other families don't have to deal with the problems we have dealt with in regards to nursing. It is not fair and very disheartening.
Okay sorry for my ranting, but I needed to vent. I have been pretty upset today as I had another issue with nursing. I'm sorry, I am usually upbeat, but so disappointed with the nursing company and who they send into our home.
Okay got that out of my system. I will let you all know how his blood work looks either tomorrow night or Friday morning. OH YEAH new pictures are coming!!
Again, thank you all for checking in on Caleb. You are a wonderful support system for our family. God Bless you all!!
God Bless Caleb!!
Friday, August 01, 2008
Couple More Updates
Hello all. . .
Well here are some more updates on the little man:
We have continued to wean his immunosuppression drug and we will continue to do so as long as his skin and gut handle the decrease okay.
We have started the communication with early intervention (therapists) so hopefully we can start working with Caleb on feeding, speech, PT, OT, etc.
We are continuing to increase his g-tube feeds and decrease his IV nutrition. He is now up to 40 mls and hour on feeds! So exciting a little over an ounce.
He did get his tetanus shot so hopefully Dr. Markert will be contacting us soon to request his first functional blood work to be drawn. We are anxiously awaiting for that call.
Caleb is amazing me every day. His new thing is he loves yelling our dog Saba's name. I don't think Saba likes it as much though, poor thing. He also loves books. So amazing he will sit and act like he is reading for hours, really hours. He studies the books so closely. Yes he's a genius-okay I'm partial. HA HA
Okay, so I'm a little puzzled by the video camera. I am still trying to get videos from his second birthday. I am sure it is easy to do . . .I am working on it guys!! I did get another part for the camera, so we should be able to take tons of pictures of Mr. Photogenic. He will love that. I do have some older pics from May and June, so I included those below. There are a lot of close up shots in this group. We were trying to get a bunch of pictures at that time in regards to his cleft lip and nose repair healing status for his baby book. I will be adding more pictures once we get some new ones taken.
Well I continue to look for a job, if I had a nursing degree I could get paid for the care I am providing Caleb. Although I feel like I have a degree. Our nurse Amy, has said she is willing to work longer hours so I can go back to work. She is great - we will really have to work together to make a schedule work as she is still our only nurse. It is not like I really want to go back to work, as I am afraid how it will effect Caleb's development as we do a lot of therapy together every day and I do not want him to regress. I do not feel like it would be such a determent to his development in another six months or so, but we have a lot of bills to pay and the economy is not really helping Brian right now as he is a loan officer. I have looked at options of working from home, but they all seem like scams. I did find out today though if I get my first aid and CPR recertified I can get paid some money for the care that I provide Caleb that we are not getting through the nursing co. We are going to be looking into that - anything helps right?!?!?
Well all I am and so is Caleb very tired as we have a couple long weeks in a row. Take care everyone. Thanks for checking in. God bless you all!!
God Bless Caleb!!
Well here are some more updates on the little man:
We have continued to wean his immunosuppression drug and we will continue to do so as long as his skin and gut handle the decrease okay.
We have started the communication with early intervention (therapists) so hopefully we can start working with Caleb on feeding, speech, PT, OT, etc.
We are continuing to increase his g-tube feeds and decrease his IV nutrition. He is now up to 40 mls and hour on feeds! So exciting a little over an ounce.
He did get his tetanus shot so hopefully Dr. Markert will be contacting us soon to request his first functional blood work to be drawn. We are anxiously awaiting for that call.
Caleb is amazing me every day. His new thing is he loves yelling our dog Saba's name. I don't think Saba likes it as much though, poor thing. He also loves books. So amazing he will sit and act like he is reading for hours, really hours. He studies the books so closely. Yes he's a genius-okay I'm partial. HA HA
Okay, so I'm a little puzzled by the video camera. I am still trying to get videos from his second birthday. I am sure it is easy to do . . .I am working on it guys!! I did get another part for the camera, so we should be able to take tons of pictures of Mr. Photogenic. He will love that. I do have some older pics from May and June, so I included those below. There are a lot of close up shots in this group. We were trying to get a bunch of pictures at that time in regards to his cleft lip and nose repair healing status for his baby book. I will be adding more pictures once we get some new ones taken.
Well I continue to look for a job, if I had a nursing degree I could get paid for the care I am providing Caleb. Although I feel like I have a degree. Our nurse Amy, has said she is willing to work longer hours so I can go back to work. She is great - we will really have to work together to make a schedule work as she is still our only nurse. It is not like I really want to go back to work, as I am afraid how it will effect Caleb's development as we do a lot of therapy together every day and I do not want him to regress. I do not feel like it would be such a determent to his development in another six months or so, but we have a lot of bills to pay and the economy is not really helping Brian right now as he is a loan officer. I have looked at options of working from home, but they all seem like scams. I did find out today though if I get my first aid and CPR recertified I can get paid some money for the care that I provide Caleb that we are not getting through the nursing co. We are going to be looking into that - anything helps right?!?!?
Well all I am and so is Caleb very tired as we have a couple long weeks in a row. Take care everyone. Thanks for checking in. God bless you all!!
God Bless Caleb!!
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